An Essential Caregiver Resource: The Caregiver’s Companion by Debra Kelsey-Davis and Kelly Johnson

the-caregivers-companion300dpiAt six this morning, I heard it: the whirr of my mother’s chair lift coming up from the basement. She was fully dressed, and had her bags packed, which means she must have been up since at least three.

“It’s time to go to the train. Judge says I have to go to Vermont.”

That damned Judge — the one in her head, who keeps giving her these untimely messages — is getting on my last nerve. Now, some experts will tell you that when someone with Alzheimer’s or other forms of dementia has hallucinations like these, it’s better to go with them to their world, rather than force them back to yours. These experts have never dealt with a pandemic, so I try to find middle ground.

“Remember the quarantine, Mom? The governor says we all have to stay put … the planes and trains aren’t even running right now.”

“Your Dad says they want me there today. Then it’s off with my head.”

Her head is down, her expression angry. She is waiting for the next move. In this case, distraction. Time for the big guns.

“You know, Mom, we’ve been cooped up here for a few weeks now. I could really go for an Egg McMuffin. How about you? Would you like to go to McDonalds with me? We could wear those fancy masks I’ve been making, and take Sarah with us.”

“And orange juice? And hash browns?”

“Sure. Let’s get a little fresh air. We can’t go to the train because of the quarantine. But if we wear our masks, we can do the drive-through at McDonalds.” And, thanks be to heaven, she nodded her head and grabbed her cane.

I grabbed the car keys and followed. That Egg McMuffin was going to give us a stay of execution.

Has your loved one been experiencing a greater number of auditory or visual hallucinations in the last six weeks, since the quarantine began? How have you been coping? My friends Debra Kelsey-Davis and Kelly Johnson over at “Nourish for Caregivers” are putting the finishing touches on their new full-color journal, “The Caregiver’s Companion: A Christ-Centered Journal to Nourish Your Soul,” available in August through Ave Maria Press (you can pre-order the book here).

 

Dealing with Dementia: Don’t Forget Fun

potatoes fun knife fork

Photo by Pixabay on Pexels.com

For Labor Day, we were invited to some friends’ house for a barbecue — they are new friends from church, a young couple and their adorable ten-month-old. If those cherubic cheeks didn’t seal the deal, the fact that she asked me to make my potato salad and favorite frozen dessert gave me warm fuzzies. This kind of casual hospitality is wonderful because it (a) lets me contribute and (b) is so low-pressure: just sit out on the covered deck, sip wine and feast on burgers and sides … and if someone misbehaves, no one cares. They even invited the dogs to come and romp in their spacious back yard.

The best part was watching mom’s eyes light up as I sang silly songs to the baby … the same silly songs, I’m sure, that she once sang to me. “You look just like a grandma,” she said to me. And the thing was, I kind of reveled in it. My own teenagers sat with their faces in their phones, until Chris got bored and started playing with his dog … our eleven-year-old Aussie shepherd who chased a ball, pulled something, shrieked, and fell down.

That was when life set in again. Mom urgently needed a rest room, Craig stood to leave because two hours was the most he could spare away from his desk right now (he’s been working nonstop for the last month), and Sarah launched into a never-ending monologue about her birth family, who she would be spending Christmas with this year.

Reluctantly I got up and started clearing the dishes. It was nice while it lasted.

We all got home and went to our respective quiet places … and the next thing I  knew, three hours had passed. I had NAPPED for THREE HOURS! Probably would have kept on napping, too, if my daughter’s tumbly hadn’t started rumbling. “What’s for dinner, mom?”  I was struck by the heaviness of the quiet. I could feel the stress closing in again, like a suffocating cloud.

Craig was still at his desk. Mom needed her meds and a bath, but she was still passed out on her bed, fully clothed, having been exhausted from our excursion. Chris was perched by the dog crate, plaintively wondering aloud if Maddy needed to go to the vet. (We spent three hours that night at the animal ER.) Sarah was alternately blasting her music and screaming at us to get dinner NOW.

I whipped up a sheet of Super Nachos, heated up some leftovers for mom’s dinner … and then I dug a Buster Bar out of the fridge (half a bar is my go-to indulgence), closed my eyes, and thought about the day. I could still see my mother’s happy smile and hear the infant’s delighted chortle as I blew a loud raspberry on her tummy. My tastebuds still danced from that glass of pino grigio, juicy burgers, and my friend’s delicious green bean almond salad. Tomorrow would come — the caregivers, the workday, the chauffeuring kids hither and yon. Yes, we were likely looking at thousands of dollars if the dog needs surgery.  But today … today we made a memory.

If you are a caregiver for an elderly loved one (or younger ones with special needs, or whatever your particular situation entails), it can be easy to get caught up on the frazzle dazzle. But try not to. Try to find one thing … anything, really, to enjoy. To remember and treasure as a memory. Those bright spots are golden when the rains come, as they inevitably do.

Moms are the heart of the home, the keeper of secrets and memories. If we find a reason for joy, the rest of the family tends to follow suit. And when we give in to the dark side, home becomes a dark place indeed. So … hold on to those wine-sipping, baby giggling memories. Find something to laugh about. It matters more than you know.

 

A Mother’s Day Wish

flowersSo last night just as I was putting dinner on the table, Man Boy galloped through the kitchen, into the dining room, and sent a plastic package spiraling toward the table. “Happy Mother’s Day, Mom,” his voice trailed off as he galloped upstairs to the sanctuary of his room.

My annual white roses had arrived.

Now, I love getting flowers, and white roses are my particular favorite. (Mom got some pretty ones from my sister in New Hampshire, too!)

The thing is, this weekend is prom, and Chris is taking someone we haven’t seen since we moved here from Pennsylvania. When he turned 18 he was allowed to reconnect with his birth family, and so this seemed to him  like a good way to go. To be honest, I have mixed feelings about the whole thing. But it’s time to start letting go, and letting Boy Man turn into Manly Man. Make his own choices.

Ready or not.

So, Lord, if you don’t mind, here are a few things I’d really like for Mother’s Day this year.

Help me to see the world through my teenager’s eyes. When I’m on the receiving end of Sass and Snarl, it’s easy to get irritated and belligerent. Help me to breathe deep, and exhale compassion, consideration, and kindness. You know, the kind of things I’d most like from them.

Give me a heart for the ornery. You know who I mean, Lord. Help me to flex my spine a bit, and dust off my sense of humor, and have a little fun.

Let me keep perspective. Just because I don’t like what they’re doing or saying, doesn’t mean it isn’t a normal phase of their development. Give me the grace (so I can give it to them) to let them be just exactly who they are, without reproof or criticism.

And … well, please help me. Because you know I don’t have an unlimited fuse. Help me to live in a way that, when I am old and wrinkled, they remember me fondly … and pick the good nursing home. Because I know that just as shaped their past, they will have a hand in my future. It’s the beauty of family … something we can all celebrate this Mother’s Day.

A Caregiver’s Psalm 23: Through the Valley of the Shadow of Dementia

sheep1The Lord is our shepherd, what more could we want?

He guides us to rest in electric recliners, to sip cool water.
When confusion invades, he bids me peace.
He diverts and reassures me as is needed,
And stays very close at the whisper of his name.

Though we traverse in the shadowy places,
where memories threaten to overwhelm and bring pain.
I will not fear tomorrow, for you give me strength.
You lift me high up above the turmoil, and help me
to see that one day we shall laugh together again.

We set the table together at suppertime,
and I pray that the pills do their job.
And that the Spirit will breathe peace
to fill in those rough places.

You fill up my head with love
and reassurance, and I smile
As once again we celebrate
being together as a family.

You are goodness and mercy,
and will never leave us, even at the hour of death,
When at last we will dwell in your house,
and all pain and suffering will be gone forever.

amen