What is it like, to watch a parent die from dementia? It varies so much from person to person, of course … I can only share what it is like, watching my own mother: It is a roller coaster called Mortality Road; no one ever wants to get onboard, and once you are on, you are helpless to escape.
This roller coaster called dementia has reached a new low point for us this week. I look at my mother, curled in a ball on her bed, her eyes vacant. She does not eat, drink, or speak. And I feel as helpless as I did as a child, when her rages would drive me to my room, rooting around for a safe space. But now the only rages are taking place inside her head, where I cannot hear them — and cannot contradict.
There’s no running now. I’m in charge. Or so it says on paper. In reality, it’s her mental demons that are calling all the shots. Sometimes the voice sounds like my father, other times it’s this ever-present asshole my mother calls “The Judge,” telling her she is going to be executed for her many failings.
The chaplain at her daycare has given her a “Certificate of Innocence.” Her doctors have repeatedly told her she needs to take care of herself by eating and drinking. I have done everything I can think of, tempting her with all the things that used to make her eyes twinkle.
And here it is, 2:00 in the afternoon, and her breakfast tray remains untouched. I have to step away for a moment, just to take a deep breath and remind myself that it is the disease, and not my mother, who is at the root of the problem. She is not fighting for control. She has already been beaten by these unseen powers.
We are walking Mortality Road. And ever step gets steeper and harder.
We are facing the fact that, in the end, this disease is going to kill her.
And the only satisfaction I can take from it all.
The only thing that keeps me from feeling like a total failure.
Is knowing that we persevered, together, no matter what.
And that when it is over, the clouds will clear,
And she will know with the blessed assurance of eternity
Just how much she was loved all along.